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a slow recovery that requires more than desire or willingness ...

regain strength as needed, needed specialized exercises that day beginning these exercises with Kinesiologist. These exercises consisted of walking, breathing, routine we did for the entire stay in the hospital.
I visit the nurse to explain the management of iliostomia because before leaving the hospital was handling very well all procedures to change this bag. The process included learning how to clean very well and had a family so he could also learn this technique effectively.
This offered my husband and my daughter Ximena Fernando. The nurse tells me I must learn to accept help from others but I wanted to do it alone, sometimes, probably, I would feel limited.
Later, I realize how right she was the nurse, and often had to ask for help, something new for me, I tried to be as independent as possible in managing and overcoming the crisis.
In the following days I met Sandra, were neighbors in bed, she had breast cancer and needed urgent surgery.
also one of sixteen children had leukemia.
It was sad, and both could join us more bearable hospitalization.
I realized that being hospitalized in the common room had its advantages, it also could smile at the pain, share the experience of being with the health limit.
Each proved their mettle and exposed the moral reserves with which to face a personal battle in which life is drained, if faced with courage, determination and recovery of health.
With Sandra, later we met and cancer controlled was put on a new chest, and he was not mutilated, his son also was in control of leukemia.
Eventually I had to hospitalize me many times, and each had the opportunity to meet many women patients all very valuable.
Some knew that we would be only after we pass through this world, and they were going home with a terminal diagnosis, with some phone numbers and addresses us and let us contact you frequently, when they come to Valparaiso pass me see.
What I noticed that, despite being in fragile health, we could still smile.
I believe that under these conditions, being manifests all human feelings, but always leave these events grew a little more

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It's been several days. Ximena
My daughter is the closest has been the recovery process, does not leave me alone and wants to feel it with me to transfer securities and energy. The notice impaired, very tired.
Being subjected to such tension takes the impact, even in young physique.
This time, I insist that you return to Valparaiso and so you can relax and disengage a bit from the hospital, I feel a great fear that she will get sick.
The next night the wrong step I feel a little feverish and very restless. I have
devastating dream I see as a premonitory dream about the evolution of surgery.
wake up with a more than physical pain, it was a pain in the soul.
Start the day with very little energy, I want both to be at home surrounded by my family.
I want what every patient craves: • Leaving the hospital

• be at home
• •
heal my life back with my family.
But there is nothing to do.
The treatment is not over. Come to see the doctor and treating doctor, I see impaired and sad.
I commented that I had a bad night and it costs me to get used to sleeping in a room where there are more patients all care. Also, I miss my family, I want my bed, my house, my people.
After examining at length, I say I have a fever and arm phlebitis.
decide to take other tests of blood counts, PCR. The doctor left me a regimen of soup, jelly, tea, biscuits.

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the following days ... getting ready to solve the long process that I have lived

twenty-fourth day I was hospitalized for me all the tests and preoperative bowel preparation. All exams are going well, I am ready for action.
early the next day my family comes to say goodbye and wish everything goes well, entrance hall at eight o'clock, I received the medical team saying everything will be alright, I feel quite confident in my treating doctor and his team.
There are eight senior professionals in my care
This surgery lasts up to fourteen hours. After six hours, and in the ICU I see my physician. I said everything went well and he has already communicated with my family who are waiting to receive me.
was a great joy to see them again, their faces concerned, I understand all the stress of that happened while I was in the pavilion. I also visit my friends who live in Santiago, they also reflected the concern on their faces, I receive many phone calls. Daily
passed medical traffickers to me and say he was doing well, but I still felt very weak. Back in my room
Ximena daughter comes to me, looks at me with concern. Making me brave, I say I'm fine, she decides to stay all day with me.
Five days later, I take my first cup of tea.
In the afternoon, start out early in the iliostomía gases, that is a very good sign means that the intestines begin to function. In the afternoon I visit all the family continue their faces tense and worried.

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In search of certainties .... Surgery as a solution

few days pass and I decide to call the doctor who had treated me for many years and in whom I trusted.
Me suggests that you book a consultation with other professional staff at the Catholic University Hospital, these professionals have much experience in these surgeries.
The next week came to consult the new doctor for a second opinion on the subject of the proposed surgery.
There was a good communication with these professionals. I had the opportunity to ask my questions and concerns. I listened carefully and responded to each of my queries.
was very adamant in telling me it was a major surgery but, while programming the risks would be controlled and would have a ninety percent chance of being left without any sequelae.
Leaving the consultation I felt more quiet. Apparently he was against the professional who had sought.
decided to do a colonoscopy exam the following week in order to see how advanced the colitis and make the respective biopsy.
After five days and were the results and again went to the doctor, a biopsy had been normal but the colitis was active.
The doctor suggests that it should operate, but before going to talk to the treating doctor.
Then my doctor explained very well what the operation, in this case would be two surgeries:
• The first would remove the large intestine, part of the rectum and left with a iliostomia (The end of the ileum is brought through the abdominal wall through a hole called a stoma, which helps to eliminate fecal matter and mucus) This stool is received by a bag which consists of two parts:
1. an adhesive that sticks to the skin surrounding the stoma, is used with a special adhesive that allows the digestive juices do not damage the skin
2. a pouch that attaches to the adhesive to the bag pressure is fixed. Does not move or take off, but wet.
With the year in the abdomen I have to be approximately four to six months.
• The second surgery is done to close this iliostomía.
Thus, there is the normal bowel transit with deposition of four times a day.
But the main thing would drugs forever. Anyway, that was what convinced me to accept this solution to my illness.
I leave the office with a new hope of finally seeing that I solved this disease because my performance limitations in daily living.
The surgeon after talking to the doctor, communicating with me and so we set the day of surgery for March 26.
few weeks earlier, I fail corticosteroids and immunosuppressants, but stick with masalazina suppositories.

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begin to seek information about surgery, their cost-benefit-effects.
knew it was major surgery, so I spent many hours a day to gather information through medical journals and some articles on the Internet.
The information I found I did notice that was in a critical situation as I had suggested the doctor was at a time when the colitis had a chronic course that is not controlled with medication. Require surgery scheduled by consensus and selective.
does not accept surgery could have the following difficulties:
• toxic megacolon, perforation
• peritonitis,
• bleeding, acute ulcerative colitis
• uncontrollable.
Again I was in the same situation when I first received the diagnosis of ulcerative colitis who did not know anyone with this diagnosis. This
not know anyone who had gone through this surgery.
I was faced with something unknown, but fortunately some professionals have written about this information attached (left column) once informed
already decided to visit the surgeon's experience in the region that was part of the medical team of doctor, she hands me a letter
interclinical to Him I turn to the consultation, I decided go alone, had to make a very difficult decision and I want to have this first interview with the doctor, without any interference.
In my book I have three questions that I raise through the conversation.
Your answers will not let me be satisfied before the competent professional to give satisfactory answers to specific questions and techniques, but against the professional who knows enough about it, but not enough to leave the patient as being in their hands. Again
question the doctor-patient relationship. I get out of this consultation
thinking about not submitting to this operation and wondering: Why
I was interested in human behavior of the physician? Does the doctor should be able to understand a person limited by your illness? Is it a problem of my personality? Would it be enough that the professional eminence was recognized by his peers? A patient may require your doctor for a long talk in which clearly setting out the treatment options? (Risks, benefits of therapeutic interventions and their side effects) Was it lawful for the patient, participate in decisions that affect their health? Is not part of the rights of patients, be duly informed and enlightened person who understands what you speak?
I had no answers to these questions, only me with a sense of anxiety and insecurity.